[Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review].

نویسندگان

  • Tatiana Dela-Sávia Ferreira
  • Elisângela de Paula Silveira-Lacerda
  • Marco Tulio Antonio García-Zapata
چکیده

OBJECTIVE To identify genetic counseling programs that do not encourage therapeutic abortion for individuals with hemoglobin disorders and/or for their relatives. METHOD Systematic literature review of articles published from 2001 to 2012 that are located in the PubMed, LILACS, SciELO and SCOPUS databases using keywords in Portuguese, English and Spanish and that met the inclusion and exclusion criteria described on a standardized form. RESULTS A total of 409 articles were located, but only eight (1.9%) were selected for analysis. CONCLUSION Although seldom mentioned in the literature, educational/preventive programs targeting hemoglobinopathies are feasible and allow the affected individuals to acquire knowledge on the consequences of this condition and their odds of transmitting it.

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عنوان ژورنال:
  • Revista da Escola de Enfermagem da U S P

دوره 48 5  شماره 

صفحات  -

تاریخ انتشار 2014